Chris, Heidi, Nixon and Ruby

I thought I would post an update since we had so many kind comments, well wishes and prayers, along with texts and phone calls asking how our little lady is doing.  On top of that, when we were preparing for the surgery I loved reading blogs and seeing updates on other kids who had undergone surgery for craniosynostosis. I thought I would pay it forward! Finally, I know I need to journal about this, so writing this post will allow me to have it for all of us to look back on when Ruby is old enough to understand what happened!  I am killing lots of birds with one stone! We knew going into the surgery that she would get swollen to the point that her eyes would swell shut. I thought it would be interesting for people to see the transformation in her face over the first couple of days. Right after the surgery they told us the swelling peaks at 24 hours so I started counting down the minutes until we would start to see improvements.  20 hours after the surgery, they start...

We are currently at Gillette Children’s Hospital, sitting in a quiet hospital room with a very sleepy baby wrapped in a turban.  Nixon is at a dog show with a hospital volunteer, which is nice, since he is struggling because he has had two days now without a nap.  To this point, everything has gone smoothly.   When Ruby was first born, still in the hospital, the pediatrician came to check her out.  Everything looked great but he expressed some concern about her head shape, but quickly stated “it’s probably nothing to worry about though.”  Uh… not comforting.  Six days after she was born we headed to Utah to visit family and that pushed her two week appointment back to three weeks.  Throughout those three weeks, I had this little concern constantly in the back of my mind that something might be wrong with her head.  The pediatrician hadn’t gone into detail about what was wrong or what it might mean, so, of course, I feared the worst.   ...